Wednesday, May 23, 2007
JOY UPDATE: Joy has taken a turn for the worse. She spiked a fever of 104 yesterday and again today and her breathing is more labored. Please continue to pray for God's perfect timing and perfect peace.
Thursday, May 17, 2007
Tuesday, Joy started feeling a little better, Wednesday even a little more so. By Wednesday afternoon, she was sitting up asking for her lap top, eating french fries (her request). The doctors were befuddled! They decided they should just send her home with hospice care. They were now saying she had maybe a week, maybe two. The process of sending her home should have taken a week, but as I write this we are awaiting transport home and it is only Thursday!!! God IS good - all the TIME!
In order to go home, she needed to be on 60% oxygen and stable. I am happy to report she is just that! Her coloring is good, her appetite is coming back (she just ate a McD's cheeseburger), her oxygen levels are up, and her heart rate is staying low!!! God is good - ALL the time!
Through out this process I have felt like I was walking a balance beam. One the one hand accepting that Joy's death was God's will and knowing that Heaven was a million times better than life here on earth. On the other hand having faith that God could reverse the process and heal Joy. Seeing the lives that Joy has impacted while here is just amazing. God has touched so many people through Joy - so many unbelievers. And our family had been so blessed by so many people as well. All of Joy's doctors are making plans to come visit her at home with their families. They have given her their home numbers and personal emails (something many of the nurses are quite jealous of :) !!!). GOD IS GOOD - ALL THE TIME!!!
We do not know if this is a reversal or just a postponement. But what we do know is that Joy is now talking about things she hopes to do in six months. This is a change in attitude for her. I've also seen my mom's attitude change. She too is talking about the future. Joy is still weak and her treatment plan is still to make her comfortable, not to "cure" her; but we know that God is really in charge and He is GOOD!!! ALL the time!
Thursday, May 10, 2007
Yesterday we had a Princess Party! Three little girls came and we made cute purses, did their hair and nails with LOTS of glitter. Then we went to the park for a photo shoot and to pick flowers. Then back home for a tea party! Lemonade, chocolate-covered strawberries, pink m&ms, cookies, and cupcakes (thanks Martha for the cupcake idea!). Carrie read the book God's Little Princess to them while they ate. The girls really seemed to have fun and we got some great shots outside (thanks Carrie!). I'm putting together little thank you books tonight, so I'll try and get some pictures and post later. All in all it was a fun time. It is still hard to believe my little girl is four! Mike measured her the other day and she has grown a whole inch in the last 30 days!!! No wonder none of her clothes are fitting!
Tuesday, May 8, 2007
This picture was taken in Seattle almost eight years ago, but I thought it was so pretty.
Today is Joy's 21st birthday. It is bitter-sweet as she is still hospitalized. My last phone call with Mom said there was "no change", not worse, but also not better. They were going to visit with the doctor again this afternoon. Joy is named after both of my grandmothers - Joyce and Elizabeth. "Grammy" Elizabeth went to live with Jesus last August. Her birthday was May 5th, so she and Joy had a very close bond. Grammy called her "Joybells".
Joy started making beaded necklaces a few years ago and very seriously two years ago before her diagnosis. She has adopted the butterfly as her "trademark" and always includes a butterfly bead in her work.
Monday, May 7, 2007
Saturday, May 5, 2007
Thursday, May 3, 2007
Jeffrey: "Here, Mama."
Holding his hand up towards me with a finger pointing.
Me: "What sweetheart?"
Taking his hand.
"Thanks for the booger!"
Overheard at Mandy's house...
Andrew: "Caleb said you can't pick your nose and ride a motorcycle at the same time. You might fall over!"
UPDATE: Mike says you can if your helmet isn't a full-face helmet. Apperently he's tried. Eeeewwwww!